2006 - 2007 Publications and Presentations

1. Becker J, Kocalevent R, Rose M, Fliege H, Walter O, Frommer J, Klapp B. Standardized Diagnosing: Computer-Assisted (CIDI) Diagnoses Compared to Clinically-Judged Diagnoses in a Psychosomatic Setting. Psychother Psych Med 2006;56:5-14.

2. Bjorner JB, Chang CH, Thissen D, Reeve B. Developing tailored instruments: item banking and computerized adaptive assessment. Qual Life Res 2007 Feb 15; [Epub ahead of print]. PMID: 17530450.

3. Bjorner JB, Wallenstein G, Martin M, Lin P, Blaisdell-Gross B, Tak Piech C, Mody S. Interpreting Score Differences in the SF-36 Vitality Scale: Using Clinical Conditions and Functional Outcomes to Define the Minimally Important Difference. Current Medical Research and Opinion 2007;23(4):731-739.

4. Borritz M, Rugulies R, Bjorner JB, Villadsen E, Mikkelsen O, Kristensen TS. Burnout among employees in human service work: design and baseline findings of the PUMA study. Scand J Public Health 2006;34(1):49-58.

5. Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M, on behalf of the PROMIS Cooperative Group. The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Med Care 2007;45(5 Suppl. 1): S3-S11. PMID: 17443116.

6. Chakravarty E, Bjorner JB, Fries JF. Improving patient reported outcomes using item response theory and computerized adaptive testing. J Rheum 2007;34(6):1426-1431.

7. Cook KF, Teal CR, Bjorner JB, Cella D, Chang CH, Crane PK, Gibbons LE, Hays RD, McHorney CA, Ocepek-Welikson K, Raczek AE, Teresi JA, Reeve BB. IRT health outcomes data analysis project: An overview and summary. Qual Life Res 2007 Mar 10; [Epub ahead of print]. PMID: 17351824.

8. Emery P, Kosinski M, Li T, Martin M, Williams GR, Becker JC et al. Treatment of rheumatoid arthritis patients with abatacept and methotrexate significantly improved health-related quality of life. J Rheumatol 2006;33(4):681-9.

9. Fries JF, Bruce B, Rose M. Improving the health assessment questionnaire: the HAQ-100. (2007, Under review, American College of Rheumatology meetings).

10. Fries JF, Bruce B, Ambrosini D, Lingala B, Ware JE. Better assessment of disability outcomes: item improvement is neglected but essential. Arthritis Rheum 2006;54:S534.

11. Fries JF. The promise of the future, updated: better outcome tools, greater relevance, more efficient study, lower research costs. Future Rheumatol 2006;1(4):415-421.

12. Fries JF, Bruce B, Bjorner J, Rose M. More relevant, precise, and efficient items for assessment of physical function and disability: moving beyond the classic instruments. Ann Rheumatic Dis. 2006;65 (suppl 111):16-21. PMID: 17038464.

13. Fries JF, Bruce B, Cella D. The promise of PROMIS: Using item response theory to improve assessment of patient-reported outcomes. Clin Exp Rheum. 2005;23 (suppl 39):S53-57. PMID: 16273785.

14. Fries JF, Bjorner J, Hubert H. Reduction in Sample Size Requirements for Clinical Trials While Holding Study Power Constant, Arthritis Rheum 2005;52:S266.

15. Groenvold M, Petersen MA, Idler E, Bjorner JB, Fayers PM, Mouridsen HT. Psychological distress and fatigue predicted recurrence and survival in primary breast cancer patients. Breast Cancer Res Treat 2007 Jan 3; [Epub ahead of print]

16. Haley SM, Siebens H, Coster WJ, Tao W, Black-Schaffer RM, Gandek B et al. Computerized Adaptive Testing for Follow-Up After Discharge From Inpatient Rehabilitation: I. Activity Outcomes. Archives of Physical Medicine and Rehabilitation 2006;87(8):1033-42.

17. Kosinski M, Bjorner JB, Ware JE, Jr., Sullivan E, Straus WL. An evaluation of a patient-reported outcomes found computerized adaptive testing was efficient in assessing osteoarthritis impact. J Clin Epidemiol 2006;59(7):715-23.

18. Martinez FJ, Raczek AE, Seifer FD, Conoscenti CS, Curtice TG, D’Eletto T, Cote C, Hawkins C, Phillips AL Development and Initial Validation of a Self-Scored COPD Screener Questionnaire (COPD-PS). Under review, Journal of COPD, 2007.

19. Thissen D, Reeve B, Bjorner JB, Chang CH. Methodological issues for building item banks and computerized adaptive tests. Qual Lif Res 2007; Feb 10 [Epub ahead of print]. PMID: 17294284.

20. Watt T, Groenvold M, Rasmussen AK, Bonnema SJ, Hegedüs L, Bjorner JB, Feldt-Rasmussen U. Quality of life in patients with benign thyroid disorders. A review. Eur J Endocrinol 2006;Apr;154(4):501-10.

Books, Book Chapters and Manuals

1. Saris-Baglama RN, DeRosa M, Raczek AE, Bjorner JB, Turner-Bowker DM, Ware JE Jr. The SF-10™ for Children Health Survey: A User's Guide. Lincoln (RI): QualityMetric Incorporated. 2006.

2. Turner-Bowker D, DeRosa M, Ware JE Jr. SF-36 chapter. Encyclopedia of Epidemiology. 2006.

Reports

1. Kosinski M, Bjorner JB, Ware JE Jr, Sullivan E, Straus W. Computerized Adaptive Testing offers an Efficient Approach to the assessment of Osteoarthritis Impact. 2006.

2. Ware JE Jr. Benefits of new combination therapy are not just long-term. 2006. The Hepatitis Information Network, HepNews.

Abstracts / Poster Presentations

1. Becker J, Fleige H, Rueya D, Rose M, Bjorner JB, Klapp B. Validation of A German Computerized Adaptive Test for Measuring Anxiety(A-CAT). ISOQOL 2006. October 11, 2006.

2. Becker J, Rose M, Gandek B., Bjorner JB. Literature Review of Electronic Patient Reported Outcomes (EPRO) Measures Including Feedback Reports for Clinical Practice. ISOQOL 2006. October 11, 2006.

3. Becker J, Rose M, Bjorner JB, Gandek B, Ware JE, Fries F. Building a preliminary physical function item bank to inform item selection for the Patient-Reported Outcomes Measurement Information System (PROMIS). Poster at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11-12, 2006.

4. Bjorner JB. Evaluation of Mode Effects in the SF-36 – Score levels may be affected, but the measurement model was robust. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11, 2006.

5. Bjorner JB, Kosinski M, Sun X, Ware JE Jr. Calibration of Item Banks For Use in Improving Estimates of Eight SF-36 Health Constructs. 13th Annual Meeting of the International Society for Quality of Life, Lisbon, Portugal, October 14, 2006.

6. Cote C, Raczek AE, Curtice T, D'Eletto T, Conoscenti C, Phillips AL. Validating the COPD-PS: COPD Screening Survey in the General Population. International Conference of the American Thoracic Society, San Diego CA 2006. May 19, 2006.

7. DeRosa M, Raczek AE, Saris-Baglama R, Dumas HM, Fragala-Pinkham MA, Ware JE Jr. Comparing the Performance of Physical and Social Functioning Survey Items in Children with and without Disabilities. Poster presented at the annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine. The American Academy for Cerebral Palsy and Developmental Medicine. AACPDM. September 11, 2006. Boston, MA.

8. Fries JF. Domain framework: Process for selection and priorities. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11, 2006.

9. Fries JF. PRO Measurement: Issues and challenges for measuring self-reported disability/physical functioning. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11, 2006.

10. Fries JF. PRS Independent Research Project: Stanford University — Improved Outcome Assessment in Arthritis and Aging. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 12, 2006.

11. Martinez F, Raczek AE, Conoscenti E, Grossman I, Curtice T. COPD-PS: Development of a Simple, Accurate Tool to Improve Identification of COPD Patients. International Conference of the American Thoracic Society. San Diego, CA. May 19, 2006.

12. Parkman AW,Martinez FJ, Raczek AE, DeRosa MA, Curtice TG, Phillips AL. An evaluation of health-related quality of life in patients with Chronic Obstructive Pulmonary Disease using the SF-12v2. Poster presented at the 52nd International Respiratory Congress of the American Association for Respiratory Care. Las Vegas, NV. December 2006.

13. Raczek AE. Developing an item bank for pediatric physical functioning: Defining the construct. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 12, 2006.

14. Raczek A.E., Saris-Baglama RN, DeRosa M, Dumas HM, Fragala-Pinkham MA, Ware JE. Making Pediatric Health Assessments More useful: A focus group study of parents and clinicians. Poster presented at the 13th Annual meeting of the International Society for Quality of Life Research. Lisbon, Portugal. October 2006.

15. Raczek AE, Saris-Baglama RN, DeRosa M, Ware JE Jr. Development of an Item Bank for Assessing Physical Functioning in Children. Paper presented at the 13th Annual meeting of the International Society for Quality of Life Research. Lisbon, Portugal. October 10-14, 2006.

16. Rose M. Development of electronic patient-reported outcome systems for clinical practice. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11, 2006.

17. Rose M. Opportunities and challenges of modern psychometric assessments in clinical medicine. Conference of European Network for Ambulatory Assessment. Mannheim, Germany. August 30, 2006.

18. Saris-Baglama R, Raczek AE, DeRosa M, Dumas HM, Fragala-Pinkham MA, Ware JE Jr. Multiple Meanings: How Pediatric Health Survey Items are Understood by Clinicians and Parents of Children with and without Disabilities. Poster presented at the annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine. Boston, MA. September 13, 2006.

19. Saris-Baglama RN, DeRosa M, Raczek AE DeRosa M, et al. Development, Validation, and Norming of the SF-10 for Children Health Survey. Poster presented at the13th Annual meeting of the International Society for Quality of Life Research. International Society for Quality of Life Research. Lisbon, Portugal. October 10, 2006.

20. Saris-Baglama RN, DeRosa M, Raczek AE, Ware JE Jr. Preliminary Validation of the SF-10v2 for Children Among those with and Without Disabilities. Poster presented at American Public Health Association 134th Annual Meeting & Exposition. Boston MA. November 4, 2006.

21. Seifer F, Phillips J, Raczek AE, Marton J, Curtice T. Incidence of Undiagnosed Chronic Obstructive Pulmonary Disease (COPD) Among General Practice and Pulmonologist Sites. International Conference of the American Thoracic Society, San Diego CA. May 19, 2006.

22. Turner-Bowker D, Ware JE Jr, Bjorner JB, Raczek AE. Real world applications of dynamic health assessment: Lessons from the development and clinical field testing of five new prototype tools. Paper presented at the 13th Annual meeting of the International Society for Quality of Life Research. Lisbon, Portugal. October 11, 2006.

23. Ware JE Jr. Performance and self-report measures of health status: Findings from published studies using the SF-36® physical functioning scale. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 11, 2006.

24. Ware JE Jr. PRO Concepts and methods before and after PROMIS. Presentation at Building Tomorrow’s Patient-Reported Outcome Measures: The Inaugural PROMIS Conference. Gaithersburg, MD. September 12, 2006.

25. Ware JE Jr. Health-related quality of life – 2007. Invited Lecture at the NIH. Introduction to the principles and practices of clinical research. Bethesda, MD. January 2007.