Staff
Founder and Senior Scientist-
Bibliography
John E. Ware, Jr.,
Ph.D.
Dr. Ware is the founder of the Health Assessment Lab, as well as
its corporate partner QualityMetric, Incorporated. He spent 12 years
as Senior Scientist at The Health Institute, New England Medical
Center (NEMC) and 13 years prior to that as Senior Research Psychologist
at the RAND Corporation. Dr. Ware was the Principal Investigator
for the landmark Medical Outcomes Study and developer of the SF-36®
Health Survey and other tools widely used to monitor patients' outcomes.
An internationally-recognized leader of the field of patient-reported
outcomes assessment, he serves on the faculty of Tufts University
School of Medicine and is a member of the Institute of Medicine
of the National Academy of Sciences.
Scientists:
The Health Assessment Lab draws from a national and international group
of specialists and psychometricians:
Jakob
B. Bjørner, MD, Ph.D, Senior Scientist -
Bibliography
Dr.
Bjorner is one of the pioneers in applying modern psychometric theories
to health status measurement. His research focuses on development
of item banks, modern psychometric methods, and software applications
for psychometric analyses and computerized assessment. In collaboration
with Dr. John E. Ware, Jr. through the past 10 years, Dr. Bjorner
has led the development of numerous computerized adaptive tests of
generic and disease-specific health outcomes, including DYNHA®,
the first commercialized CAT system for assessing health outcomes.
To date, Dr. Bjorner has published more than a dozen peer-reviewed
papers about item bank and CAT construction, one of which won the
2004 Article of the Year Award from the International Society for
Quality of Life Research (ISOQOL). Dr. Bjorner was a senior research
fellow at the Danish National Institute of Occupational Health and
has previously worked at the University of Copenhagen, where he received
a gold medal for research on Quality of Life and HIV. He received
his MD and a PhD in medical sociology from the University of Copenhagen.
Barbara Gandek, M.S., Scientist -
Bibliography
Ms. Gandek. has worked with the SF-36® Health Survey and
other SF surveys for the past 16 years, focusing on translations and
international research. She was guest editor, with Dr. John
Ware, of a 300-page special issue of the Journal of Clinical Epidemology
entitled “Translating functional health and well-being: International
Quality of Life Assessment (IQOLA) Project studies of the SF-36®
Health Survey.” Ms. Gandek has co-authored more than 35 articles
related to the development and analysis of patient-based health status
measures and three manuals for the SF‑36® Health
Survey, SF-12® Health Survey and SF-8TM Health
Survey. She also has developed participation measures for use in rehabilitation
research, and provided technical assistance to the Medicare Health
Outcomes Survey. An Instructor at Tufts University School of Medicine,
Ms. Gandek received an M.S. in Public Health from the Harvard School
of Public Health and a B.A. in Economics from Swarthmore College.
Anastasia E. Raczek, MEd, Senior Scientist -
Bibliography
Ms. Raczek has been involved in educational, psychological, and health
measurement for the past 19 years. She currently serves as Co-Investigator
for two NIH-funded grants (Principal Investigator John E. Ware, Jr.
PhD) to develop conceptual frameworks and computerized adaptive test
(CAT) systems for children’s health. Ms. Raczek has led several studies
on the measurement of health outcomes,
including the design and development of a CAT system for health-related
quality of life (HRQOL) assessment in chronic kidney disease,
development and validation of the COPD Population™
Screener, and norm and validation studies for
the SF-10™
Health Survey for
Children (a parent-completed short-form survey designed to measure
physical and psychosocial functioning in pediatric populations). She
also was part of the team of researchers at New England Medical Center's
Health Institute devoted to the measurement of patient-reported health
outcomes, and participated in validation studies of the SF-36®
Health Survey. She
previously served as a Research Associate in the Center for the Study
of Testing, Evaluation, and Educational Policy (CSTEEP) at Boston
College, conducting research studies of large-scale assessments with
complex sampling designs, policy research, and program evaluations.
Matthias S. F. Rose, MD, Ph.D, Senior Scientist -
Bibliography
Dr. Rose has been a Senior Scientist at Health Assessment Lab and
QualityMetric Incorporated since December 2004. Before that he worked
as an Associate Professor and Assistant Medical Director at the Clinic
for Internal Medicine, Department of Psychosomatic Medicine, Charité
University Medicine Berlin. He has a board certification for Internal
Medicine and 15 years of clinical experience, working in different
departments for internal medicine in three university hospitals in
Berlin, and since 1998 as a psychotherapist. His scientific work is
focused on exploring the value of Patient-reported Outcome (PRO) assessments
for the treatment of chronic conditions. One of his articles, exploring
the determinants of PROs of patients with diabetes, was awarded with
the Heinrich Bauer Award from the North German Diabetes Society in
1999. In 1997, his development of a German questionnaire assessing
the health-related quality of life of patients with diabetes won the
Lilly Quality of Life Award. Dr. Rose established his own work group
at the Charité applying the Item Response Theory (IRT) to the development
of Computer Adaptive Tests (CAT) six years ago, and was the first
researcher to receive support from the government-funded German Research
Society (DFG) for the development of CATs in health care. They were
the first which established CATs on Personal Digital Assistants for
use in daily clinical contexts as part of an ePRO system he and his
co-workers developed
more than a decade ago. Following an initiative from the Berlin Senate,
this software system is currently implemented in various German hospitals.
Today, he consults with national and international companies developing
mobile computer-assisted PRO assessment systems for clinical practice.
Administrative Staff:
Martha
Byington, Executive Director
Ms. Byington has been the Executive Director
for Health Assessment Lab since June 2005. She has a background in
process and quality improvement, health measurement, and healthcare
administration at a number of hospital systems in the Boston area.
She is a graduate of Smith College and received her MBA with highest
honors from Suffolk University. She can be reached at
mbyington@hal-health.org.
Blandyna
Williams, Office Administrator
Ms. Williams has been with Health Assessment
Lab since April 2004. She has her BA with honors from the University
Of Western Australia and a post-graduate degree in Library and Information
Science from Curtin University in Western Australia. She has worked
at the Massachusetts General Hospital, Polaroid, Waratah Pharmaceuticals
and PAREXEL International. She can be reached at bwilliams@hal-health.org.
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